As the parent of a 19-year-old daughter with complex health needs and physical disabilities, who will need 24 hour care for the rest of her life, it would be very interesting to learn from ESCC how they plan “to find suitable alternative accommodation for those affected” by the closure of the specially adapted Chaseley bungalows as reported in last week’s Herald.
My daughter currently lives at home with her parents but as she (and we) becomes older this is not going to be sustainable in the long term for obvious reasons. Where in East Sussex is the alternative suitable accommodation with relevant trained staff?
Due to advances in medical care during the last 20 years there are an increasing number of young people with the most complex health needs moving into adulthood and requiring suitable accommodation with 24-hour care. This requirement should not come as a surprise to ESCC and local health commissioners and providers – as these young people have been known to all the relevant agencies for many years. Yet there appears to be a complete lack of interest and willingness to identify and provide appropriate local facilities as the young people “transition” (to use the professional jargon) into adulthood.
Whilst the facility may not have been suitable for my daughter’s specific needs the closure of the Chaseley bungalows removes one of the very few local options.
It is about time ESCC and local health commissioners & providers seriously addressed the appalling lack of facilities for those with the most complex health needs, who are in need of the basic human right of somewhere to live.
Robert J Grover