A HAMPDEN Park mum and charity founder has climbed Ben Nevis and raised more than £23,000.
Marie Baker set up Dravet UK because her young daughter Aimee suffers from Dravet Sundrome, which is a rare, life-limiting and life-threatening neurological condition characterised by severe, difficult to control seizures and varying degrees of learning disability, autism, ataxia, feeding problems and delayed speech.
Dravet patients are at a higher risk of sudden death than patients with other types of epilepsy due to the risk of the longer seizures.
Marie set up Dravet Syndrome UK in January 2009 and with the aim of funding medical research , raising awareness within the medical profession and to support families affected by the condition.
The charity has brought many affected families together and 36 parents, siblings, friends and extended family members of Dravet suffers all took part in a Ben Nevis Climb recently.
Marie said, “The fundraising target for this expedition was £10,000, which was the total ﬁgure required for Dravet Syndrome UK’s ﬁrst year’s commitment to part-funding a research administrator to work alongside Dr Sameer Zuberi, one of the charity’s professional advisors at Yorkhill Hospital in Glasgow.
“The charity has agreed to provide £10,000 per year for the next three years for this position.”
However, Marie and her fundraising team smashed through the target and raised a total of £23,557.
Dravet Syndrome remains one of the least understood epileptic conditions and Dravet Syndrome UK work tirelessly to change that and to contribute towards ﬁnding a cure.
To ﬁnd out more information about Dravet Syndrome and Dravet Syndrome UK visit www.dravet.org.uk or email email@example.com.
People can also follow Dravet UK on Twitter @dravetuk or on Facebook at www.facebook.com/dravetsyndrome.