An Eastbourne mother is raising money for a life-changing piece of equipment which will allow her son to “enjoy being a child”.
Theo Hollobone, seven, has type one diabetes, a condition which prevents his body from naturally producing insulin.
In order to manage his condition, Theo’s parents have to test his blood every two hours ensuring his sugar levels remain safe.
His mum, Rebecca, said, “Bad levels can result in the worst. His dad and I act as his pancreas; we calculate carbs, insulin levels and correct low or high blood levels.
“We don’t see this as a chore, but as a privilege as we get to look after a real life superhero.”
While his parents are both dedicated to looking after Theo, he is still too young to check and manage his own insulin levels when he is at school or with friends.
This means he can end up missing out on some of the experiences available to other children his age.
In order to give him this opportunity his parents hope to raise money for a continuous glucose monitor, a piece of equipment which will allow his parents to test his blood without being in the same room.
Rebecca said, “The continuous glucose monitor will mean that we can see his blood levels wherever he is without having to follow him around. The monitor will be connected to him through the skin and will transmit results to our devices. This will mean we can let him go to friend’s house, parties and enjoy being a child.
“One of the main advantages of the monitor will be the stress and worry of him being at school will be removed. The school has been amazing and very supportive but it’s not easy looking after one child, in a class of 30, who does not always have hypo awareness.
“The monitor will give us 24-hour insight to what’s happening inside Theo’s blood so we can make school, friends’ parents and sport coaches aware they need to help as it will let us know before the situation gets dangerous.”
The equipment and sensors are not currently available through the NHS and cost around £3,500 when weekly charges are included.
To raise the money the family are holding several fundraising events including an 80s disco night at the Best Western York Hotel from 7.30pm to 11.30pm on Friday March 4.
For more details about the disco visit the Facebook page Back to the 80’s (sic) or contact Rebecca on 07909335151.
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