The team at Epilepsy Lifestyle is £1,000 better off, thanks to a local business’ fundraising efforts.
The charity’s good fortune follow an initiative by Harry Ramsden’s whereby local charities in each of its seaside towns were invited to submit their reasons why they should be chosen to benefit from in-store fundraising efforts.
Dozens of local charities took part and Epilepsy Lifestyle was the charity selected by area manager Kyle Miller and the Eastbourne team.
Kyle said, “We are thrilled to be in a position to offer much needed funds to such a worthy local charity.
“Everyone at Harry’s really got behind the initiative and we know that Epilepsy Lifestyle will certainly put the money to great use.”
Epilepsy Lifestyle was founded in March 2014 by Eastbourne mum, Marie Baker.
Marie has a 10-year-old daughter with Dravet Syndrome, a life-limiting neurological condition that causes severe epilepsy.
Marie’s daughter Aimee has very uncontrolled seizures, sometimes lasting hours. It was Aimee’s condition and the lack of practical support that prompted Marie to set up Epilepsy Lifestyle. Epilepsy Lifestyle funds night time monitoring equipment for local children and adults with an epilepsy diagnosis. Sadly the monitors they fund are not available through the NHS and can cost up to £800. The charity has been able to run the Night Time Monitoring Scheme without a waiting list since they founded and thanks to the donation from Harry Ramsden’s in Terminus Road the scheme continues to run waiting list free.
Harry Ramsden’s in Eastbourne donated 1p from every order throughout the summer and also boosted funds by holding a series of live music events called Sounds by the Seaside. They also continue to have collection boxes in the Terminus Road restaurant and take away in order to carry on their support of the charity.
To find out more about the charity and the services it provides visit the website at www.epilepsylifestyle.org.uk
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