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MS sufferer shows improvement after Poland visit
A MOTHER from Seaford said her MS sufferer daughter has shown initial improvements after travelling to Poland for tests.
Michele Findlay made the trip with her 30-year-old daughter Ella and Ella's boyfriend last month.
Since returning to the UK the Kedale Road resident said Ella, who was diagnosed with multiple sclerosis 10 years ago, has seen some positive changes.
Mrs Findlay said her daughter did not feel much in the way of improvement in the first four to five days but added, "Her feet are warmer and that is one of the problems she had for a long time with the inability to keep her feet warm. When we got home she seemed to be more energetic and she says she is walking better and walking longer distances than she had been in the last nine, 10 months.
"People are noticing that she is more alert and more energetic."
Mrs Findlay travelled abroad to find out if her daughter had Chronic Cerebro-Spinal Venous Insufficiency (CCSVI). This follows a preliminary study by a leading surgeon called Dr Paolo Zamboni from Italy who used ultrasound and magnetic resonance venography to examine the blood vessels leading in and out of the brain of hundreds of patients. He found that the majority of all his patients with multiple sclerosis he treated had defective circulation in their neck - a defect he has called CCSVI. Mrs Findlay said tests on Ella showed that she did have CCSVI.
She added, "I'm pleased that we had the most experienced doctor in this to look at her because if it hadn't been for his experience at treating patients we may well have come home without any treatment at all because it wasn't very obvious at first sight where the problem was.
"They found it in the right jugular vein between the jaw and ear."
After tests confirmed CCSVI the Farnham resident then had what is called liberation treatment which in her case involved being injected with an opaque dye and then a deflated balloon is guided up to the point of constriction and once there is inflated to widen the vein.
The procedure is designed to help free the blood flow. Mrs Findlay said, "There is a worry that the vein will collapse and that could happen tomorrow, in six months or a year but if it remains opens for as long as a year then they would do another treatment using the balloon. Hopefully things will improve some more, if the only thing that happens is she doesn't get worse that's good as well."
Mrs Findlay has, with another UK resident Gary Barclay, helped to set up a website about CCSVI.
For more information visit: www.ms-ccsvi-uk.org
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Saturday 11 February 2012
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