An Eastbourne-based charity is looking to introduce a helpline to add to its list of resources in 2013.
Eastbourne Area Epilepsy Group was founded seven years ago and Andy Evans, who was bullied after suffering seizures as a schoolboy, is keen to highlight its cause.
The 52-year-old said, “I have suffered from epilepsy since I was 10 when I fell off my bike.
“As an adult I have seen people having seizures in the shopping centre and people would think they were drunk and I thought something needed to be done, that’s why we started the group.”
He and John Lumm joined forces to get the group started and as 2013 gets underway the team is keen to continue its work at reducing the stigma surrounding epilepsy and highlight the services it offers.
The Hampden Park resident said he didn’t bring his condition out into the open until he was 31, adding, “This used to cause a few problems when I did have a seizure and people didn’t know about my condition.”
Nowadays he is much more open about it and regularly attends Hurstwood Park to speak to people who have been diagnosed with epilepsy.
The group now hopes to train people to talk in schools, get youngsters suffering from the condition together to enjoy social events and look at organising awareness days where people can learn the first aid skills needed when someone has had a seizure.
Money it received from lottery funding has gone towards buying laptops and phones which will be used when the organisation opens a helpline later this year.
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