Charity mum’s mountain trek for research cash

Marie and Aimee Baker
Marie and Aimee Baker
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THE mum of a disabled six-year-old who runs a charity will be climbing Ben Nevis to raise cash and awareness of Dravet Syndrome.

Marie Baker, a mum-of-two who lives in Hampden Park, will be trekking up the mountain on Saturday (June 30) with others who have also been affected by Dravet Syndrome.

Dravet Syndrome currently has no cure and is a rare, life-limiting neurological condition causing severe seizures and learning disability.

Marie’s daughter Aimee suffers with the condition and the dedicated mum has set up a charity called Dravet Syndrome UK.

Her charity has committed to fund £10,000 each year for three years to help fund a research administrator to work alongside a neurology team at Yorkhill Hospital, where the DNA tests for the condition are carried out.

Marie is hoping to raise enough money for the first year’s commitment through the climb and is calling on the support of local people.

She said, “We have a team of 37 people, all family members or friends of those affected by Dravet Syndrome, who are going to be climbing in an effort to raise £10,000.”

Ben Nevis stands at 4,408ft and is the highest mountain in the British Isles.

Marie is looking forward to the challenge but added, “Unfortunately I haven’t been able to fit much training in around having the girls and running the charity, so I am hoping the camaraderie will get me up there – and back down again.”

Anyone wanting to donate money to the Dravet Syndrome UK charity and show support for the Ben Nevis climbers should log on to www.justgiving.com/marie-b.

For more information about Dravet Syndrome visit www.dravet.org.uk.