Appeal for new heart to save life of Eastbourne baby

Little Marnie Brace in hospital ... her condition means her heart has to work much harder to function properly

Little Marnie Brace in hospital ... her condition means her heart has to work much harder to function properly

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A major appeal has been launched to help find a new heart for a poorly 19-week-old baby girl from Eastbourne.

Little Marnie Brace is being treated for heart failure in a London hospital and medics say she is in desperate need of a new heart.

The baby girl was born with Noonan’s Syndrome, a genetic disorder, and hypertrophic cardiomyopathy, commonly known as heart disease, in May.

Her parents Nick and Amy and older brother Jonah are constantly at her bedside at the Evelina Children’s Hospital in London.

Medics say a new heart is “very much needed” which has prompted friends of the family to appeal for a donor as well as a fundraising campaign to help ease the strain on the family.

Already almost £7,000 has been raised and a quiz night is taking place on Friday September 30 at 6pm in the Aqua Bar in Pevensey Bay to boost the coffers.

Family friend Sarah Barton said, “After Marnie was born, this beautiful baby girl needed medical intervention and support to help her heart and she was quickly diagnosed.

“Effectively, Marnie’s heart has to work extra hard to do even the simplest of things, even feeding.

“She struggled to gain weight, a term known as ‘failure to thrive’ and soon had to be fed through a tube. Then, aged just 14 weeks, Marnie was blue-lighted from Hastings hospital, back to the Evelina Hospital, where it was confirmed a new heart is much needed.

“We are raising funds to support Marnie, her parents Nick and Amy and older brother Jonah through this difficult time.

“Both mum and dad take it in turns to remain at Marnie’s bedside at the London hospital. Meanwhile, the other parent returns to the accommodation to look after Marnie’s older brother, Jonah, who only recently joined the family in London after having been looked after by relatives back home in Eastbourne.

“Amy, says being a family again and having Jonah with them gives them strength.”

People are also being encouraged to sign up to the organ donor register at www.organdonation.nhs.uk

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